MUSHIMIYIMANA Leah, umubyeyi w’umwana ubana n’indwara y’uturemangingo tw’amaraso (sickle cell disease), yasangije ubuhamya bw’urugendo umuryango we wanyuzemo kuva umwana atangiye kurwaragurika, asaba ko abarwayi b’indwara zidakira bahabwa imiti ihagije, ubufasha n’ubuvuzi bufite ireme.
Leah yavuze ko umwana we yatangiye kugira umuriro ukabije no kugira ikibazo cyo guhumeka afite amezi atanu. Umuryango wagiye umujyana kwa muganga inshuro nyinshi, aho yabanzaga kuvurwa indwara ziterwa n’ubwandu, ariko nyuma aza gusuzumwa indwara y’uturemangingo tw’amaraso afite umwaka umwe.
Yavuze ko kwakira iyo ndwara bitari byoroshye ku muryango, ariko ubujyanama n’ubufasha bahawe n’abaganga byabafashije gusobanukirwa uko bayibana ndetse n’uko bafasha umwana kuyicunga.
Mu gihe cy’ubuvuzi, umwana yatangiye gukoresha umuti wa hydroxyurea, wafashije kugabanya inshuro yajyaga mu bitaro. Ubu umwana yiga ku ishuri kandi ubuzima bwe bukaba bumeze neza ugereranyije n’igihe yatangiraga kurwaragurika.
Leah yavuze ko urugendo rw’umuryango we rugaragaza n’imbogamizi imiryango myinshi ihura na zo, cyane cyane iyo ituye mu bice bitagerwamo neza na serivisi z’ubuzima. Muri izo mbogamizi harimo kubona imiti y’ingenzi ndetse n’ubumenyi budahagije ku ndwara y’uturemangingo tw’amaraso n’izindi ndwara zitandura.
Ati: “Tugomba gukomeza gusaba ko imiti iboneka ku buryo bworoshye ndetse n’ubuvuzi bufite ireme, cyane cyane ku baturage batuye mu bice bitagerwamo neza na serivisi.”
Leah asanga abarwayi b’indwara zidakira n’imiryango yabo badakeneye imiti gusa, ahubwo bakeneye no gusobanurirwa indwara, guterwa inkunga no kubona imiti ku buryo bworoshye, ndetse no kugira uruhare mu gufata ibyemezo bijyanye n’ubuvuzi bahabwa.
Ubuhamya bwe bugaragaza ko kongera ubumenyi ku ndwara y’uturemangingo tw’amaraso no guteza imbere uburyo bwo kubona imiti n’ubundi bufasha bishobora kugira uruhare mu kuzamura imibereho y’abayibana.
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