PsorAfrica yahamagaye byihutirwa ihuriro ry’ingenzi rya IFPA muri Kenya mu gihe abarwayi bo ku mugabane bagorwa no kubona abaganga b’uruhu, abaganga b’indwara zo mu bwonko n’ubuvuzi buhindura ubuzima.
Umuntu ubana n’indwara ya psoriasis mu bice bimwe bya Afurika ashobora gutegereza imyaka myinshi kugira ngo asuzumwe, agakora urugendo rw’ibirometero amagana kugira ngo ajye kubona inzobere, cyangwa ntahabwe na rimwe ubuvuzi na bumwe. Kuri benshi, iyi ndwara irarenga ibisebe by’uruhu bibabaza ikagera ku bumuga buhoraho, kwiheba no kwigunga.
Ibi si ukubera ko ubuvuzi budahari, ahubwo ni ukubera ko uburyo bwo kuvura bukomeje kuba ubw’ubusumbane. Uku kuri gukomeye kwabaye ingenzi mu Ihuriro Mpuzamahanga ry’Amashyirahamwe ya Psoriasis (IFPA) ryabereye i Nairobi, muri Kenya mu minsi mike ishize.
Imiryango y’abarwayi, abaganga, abashakashatsi n’abayobozi b’ubuzima ku isi bateraniye hamwe kugira ngo bahangane n’icyo abavugizi bavuga ko ari ikibazo cy’ubuzima gikomeje kwiyongera ariko kidakunze kwitabwaho ku mugabane wose.
PsorAfrica ivuga ko Abanyafurika babarirwa muri za miriyoni babana n’indwara ya psoriasis barimo gusigwa inyuma n’inzego z’ubuvuzi zimaze kwangirika kubera ibura ry’abakozi, ubumenyi buke n’uburyo butari bwo bwo kubona imiti.
“Abarwayi benshi cyane muri Afurika bababara mu ibanga,” uyu ni Pierre Habiyaremye, umuyobozi wa PsorAfrica.
“Hari abantu bamaze imyaka myinshi batabona isuzuma rikwiye. Bamwe bavurwa kenshi kubera ikibazo kitari cyo. Abandi babana n’ububabare bukomeye kuko batigeze babonana n’abaganga b’indwara za rubagimpande.
Mu turere tumwe na tumwe, hari abaganga bake cyane, kandi nubwo abarwayi bavuwe, imiti bakeneye ntabwo iboneka mu buryo bw’amafaranga.” Psoriasis ni indwara idakira iterwa n’ububyimbirwe idafitanye isano n’ibimenyetso by’uruhu gusa, ahubwo inafitanye isano n’indwara za rubagimpande, indwara z’umutima, diyabete, guhangayika no kwiheba.
Abashyigikiye bavuga ko iyi ndwara ikomeje kutumvikana neza muri Afurika yose, aho indwara z’uruhu zigaragara akenshi zigaragaza imyitwarire mibi n’amakuru atari yo. Abarwayi bavuga ko bahezwa mu muryango, bacirwa imanza mu kazi, bakabazwa ibibazo mu mashuri kandi bagafatwa nk’aho indwara yabo yandura.
Helen Wangui wo mu Ishyirahamwe ry’Abaganga b’indwara za rubagimpande muri Kenya agira ati: “Abantu batekereza ko psoriasis ari ubwiza. Si byo.” “Birababaza. Binaniza cyane mu marangamutima. Bigira ingaruka ku bushobozi bw’abantu bwo gukora, kwiga, kubaka umubano no kugira uruhare rusesuye muri sosiyete. Twumvise inkuru zibabaje z’abarwayi bitandukanije n’amaso y’abaturage, cyangwa bahanganye n’ibibazo by’ubuzima bwo mu mutwe.”
Iki kibazo cyiyongereyeho ibura rikomeye ry’abaganga b’uruhu n’abaganga b’indwara zo mu mara mu bihugu byinshi bya Afurika, cyane cyane mu byaro no mu turere tudafite serivisi nziza. Impuguke zo muri iyi Forum zaburiye ko gutinda gusuzuma indwara ya psoriatic arthritis bishobora gutera kwangirika kw’ingingo n’ubumuga bidasubirwaho iyo bitavuwe hakiri kare.
Iyi Forum yanashyize imbaraga mu buvugizi bw’urubyiruko, izirikana ibibazo byihariye by’amarangamutima, imibereho myiza n’ubuzima bwo mu mutwe urubyiruko rubana na psoriasis ruhura nabyo muri Afurika yose.
Abavugizi bakiri bato bitabiriye ibiganiro ku bijyanye no kwiheba, icyizere, ubuyobozi n’igikenewe cyihutirwa cy’uko amajwi y’abarwayi bakiri bato ahagararirwa mu biganiro by’ubuvuzi no mu byemezo bya politiki.
PsorAfrica ivuga ko hakenewe ingamba zihujwe byihutirwa kuko Afurika idashobora gukemura ibyo itarapima neza. Nubwo ibipimo by’ubwiyongere bw’indwara ku isi bigaragaza ko indwara ya psoriatic igira ingaruka ku bantu babarirwa muri za miriyoni, Afurika iracyafite amakuru make yihariye ku gihugu ku bwiyongere, isuzuma, uburyo bwo kuvura n’ingaruka z’abarwayi. Uku kubura amakuru bituma ikibazo cyo kwirengagizwa byoroshye kandi bikagorana kugitera inkunga.
PsorAfrica irasaba ubufatanye bukomeye hagati y’imiryango y’abarwayi, abaganga, abashakashatsi, abashyiraho politiki n’inganda kugira ngo hubakwe ibimenyetso, kunoza inzira zo kohereza abarwayi, kwagura uburyo bwo kubona abaganga b’uruhu n’abaganga b’indwara z’imitsi, no kwemeza ko abarwayi badasigara mu buryo butagaragara mu nzego z’ubuzima.
PsorAfrica irasaba ko hakorwa ibishoboka byose, harimo:
• Kongera amahugurwa n’ubukangurambaga mu bakozi b’ubuvuzi bari imbere;
• Kohereza abarwayi vuba no gusuzuma hakiri kare;
• Kubona imiti ihendutse n’ubuvuzi bw’ibinyabuzima;
• Gushyira indwara z’imitsi mu bikorwa by’ubuzima by’igihugu;
• Kwagura ubushakashatsi n’ikusanyamakuru ry’abarwayi biyobowe n’Abanyafurika;
• Gushimangira ubukangurambaga mu kurwanya isuzugurwa.
Uyu muryango kandi wasabye amasosiyete y’imiti, abashyiraho politiki n’ibigo by’ubuzima ku isi gukora ibishoboka byose kugira ngo Afurika idahezwa mu iterambere mu buvuzi n’ubushakashatsi.
Habiyaremye yagize ati: “Isi ntishobora gukomeza guhanga udushya mu gihe abarwayi b’Abanyafurika badakomeza kugaragara. Uburinganire mu buzima bivuze ko buri murwayi wese afite akamaro, aho aba hose.”
Ihuriro rya IFPA ryo mu 2006 ni ryo rya mbere ribaye muri Afurika. Uru rubuga rwagenewe kunoza umusaruro w’abantu babana n’indwara ya psoriatic muri Afurika.
@Rebero.rw
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